Rare kidney disease research on the international stage Work from the National Registry of Rare Kidney Diseases (RaDaR) will be presented across the 2026 Congress of the European Renal Association (ERA) in Glasgow , including work from research fellows and statisticians. Dr Katie Wong, RaDaR...

We are planning an event to celebrate and to thank everyone involved in RaDaR for their enthusiasm and generous contributions of time and effort. This will take place in Summer 2025. More information to come in the New Year.

Focusing on rare conditions could significantly reduce the burden of kidney disease on both patients and the NHS, according to a major new study led by the UK Kidney Association and UCL. The study, published in The Lancet to mark World Kidney Day, draws on the largest rare kidney disease dataset...

RaDaR Patient Representative meeting, Friday 12th July 2024, London and online PDFs of presentations: Getting new therapies: the rare disease problem - Danny Gale, RaDaR Director Fertility, Reproduction, Educational and Developmental Attainments in offspring: the FREDA study - Hannah Beckwith, King...

Pre-print reporting the distribution of epidemiology and clinical characteristics of RaDaR participants (Wong et al MedRxiv, 2023; ( https://www.medrxiv.org/content/10.1101/2023.09.24.23296009v1)

Long term outcomes in IgA nephropathy (Pitcher et al Clinical Journal of the American Society of Nephrology, 2023; https://pubmed.ncbi.nlm.nih.gov/37055195/

Karger has launched a new open access online journal, free to authors and readers, exclusively focused on the glomerulus called “Glomerular Diseases” . This journal is keen to welcome original research, reviews, case reports of unique value, and patient-centered research and commentary with a focus...

More details about the study HERE Also Newsletter available HERE

The annual, national Kidney Patient Reported Experience Measure (Kidney PREM) is open to NHS kidney patients in the United Kingdom for six weeks from 1st October – 12th November. 2020 is the fourth year of the validated Kidney PREM and for the first time, it has gone fully digital. The Kidney PREM...

Please click HERE to see the poster