How can rare disease data lead to new treatments? A paper featured in the May issue of Nephrology Dialysis Transplantation (NDT) explores how RaDaR, the UK National Registry of Rare Kidney Diseases, is helping bridge the gap between rare disease data, clinical trials and treatment development. The...
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Upcoming election: UKKA Clinical Vice President (MPT)
Voting opens at 8:00 am on Friday, 15 May 2026, for the UKKA Multi-Professional Team (MPT) Clinical Vice President election. This important leadership role helps represent the clinical voice of the multi-professional kidney workforce and contributes to the strategic direction of the Association. The...
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UKIVAS statement on avacopan
The UK Immuno-Vasculitis Society (UKIVAS) has published a statement regarding recent regulatory developments relating to Tavneos® (avacopan), including actions and reviews by the FDA and EMA. The statement outlines: the FDA proposal to withdraw approval of Tavneos in the USA the ongoing EMA review...
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