What is RaDaR?

With over 35,000 patients recruited from 109 sites across the UK, RaDaR is the largest rare kidney disease registry in the world.

The National Registry of Rare Kidney Diseases (RaDaR) is a UK Kidney Association initiative designed to pull together information from patients with certain rare kidney diseases. 

It is a powerful source of real-world data that can help improve understanding of rare kidney conditions and provide information for research and clinical trials.

To make sure our data is accurate and up-to-date, we are working closely with kidney centres and laboratories around the UK. To enrich our data we are also working with centres to get important genetic test results and specific blood marker results.

RaDaR, originally funded by the Medical Research Council, Kidney Research UK, Kidney Care UK and the Polycystic Kidney Disease Charity, is now managed and funded by the UK Kidney Association.