What is RaDaR?

With over 35,000 patients recruited from 109 sites across the UK, RaDaR is the largest rare kidney disease registry in the world.

The National Registry of Rare Kidney Diseases (RaDaR) is a UK Kidney Association initiative designed to pull together information from patients with certain rare kidney diseases. 

It is a powerful source of real-world data that can help improve understanding of rare kidney conditions and provide information for research and clinical trials.

To make sure our data is accurate and up-to-date, we are working closely with kidney centres and laboratories around the UK. To enrich our data we are also working with centres to get important genetic test results and specific blood marker results.

RaDaR, originally funded by the Medical Research Council, Kidney Research UK, Kidney Care UK and the Polycystic Kidney Disease Charity, is now managed and funded by the UK Kidney Association.

RaDaR team

Director

Professor Danny Gale

University College London

Deputy Director

Dr Kate Bramham

King's College London

Operational Lead - Research and RaDaR

Dr Zoe Plummer

UK Kidney Association

Operations Manager

Susan Pywell

UK Kidney Association

Senior Data Manager

Garry King

UK Kidney Association

Data Manager Bidhan Pant

UK Kidney Association

Senior Statistician

David Pitcher

UK Kidney Association

Statistician

Dane Rogers

UK Kidney Association

Clinical Research Fellow

Dr Katie Wong

UK Kidney Association

Clinical Research Fellow

Dr Sherry Masoud

UK Kidney Association

Senior Developer Andrew Atterton

UK Kidney Association

Junior Developer Oliver Reeves

UK Kidney Association

Research Administrator Lauren Windsor

UK Kidney Association