Longitudinal analysis of RaDaR published in the Lancet

11 December 2024
Focusing on rare conditions could significantly reduce the burden of kidney disease on both patients and the NHS, according to a major new study led by the UK Kidney Association and UCL. The study, published in The Lancet to mark World Kidney Day, draws on the largest rare kidney disease dataset...
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RaDaR Patient Representative meeting 2024

2 May 2024
Friday 12th July 2024, London and onlinePDFs of presentations:Getting new therapies: the rare disease problem - Danny Gale, RaDaR DirectorFertility, Reproduction, Educational and Developmental Attainments in offspring: the FREDA study - Hannah Beckwith, King's College LondonKidney Patient Reported...
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New Glomerular Diseases Journal

20 April 2021
Karger has launched a new open access online journal, free to authors and readers, exclusively focused on the glomerulus called “Glomerular Diseases” . This journal is keen to welcome original research, reviews, case reports of unique value, and patient-centered research and commentary with a focus...
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Kidney Patient Survey PREM 2020

30 October 2020
The annual, national Kidney Patient Reported Experience Measure (Kidney PREM) is open to NHS kidney patients in the United Kingdom for six weeks from 1st October – 12th November.2020 is the fourth year of the validated Kidney PREM and for the first time, it has gone fully digital.The Kidney PREM...
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