RaDaR 15 year celebration programme - Thursday 22 May 2025

10:00am - 16:00pm

Resource for London, 356 Holloway Road, London, N7 6PA https://www.resourceforlondon.org/

10.00am Open
10.00am-10.30am Registration and refreshments

10.30am-11.00am

    RaDaR past and present

    • Welcome – Danny Gale
    • The origins of RaDaR - Neil Turner and Moin Saleem
    • Where is RaDaR now? - Zoe Plummer and Susan Pywell

    11.00am-12.15pm

       RaDaR Research

      • The effects of rare kidney diseases on kidney failure – Katie Wong 
      • Readthrough therapy in Alport syndrome: a proof-of-concept trial in children and adult patients – Danny Gale 
      • Loin pain in IgA Nephropathy – Kristina Newman 
      • Women’s reproductive health and kidney disease – Hannah Beckwith 
      12.15pm-13.00pm Lunch
      13.00pm-13.15pm A tribute to Ben Walsh – Rhys Evans

      13.15pm-14.30pm

        Patients and patient charities

        • PKD Charity – 25 years of PKD Charity and 15 years of RaDaR
        • Kidney Research UK – Research for rare kidney diseases: transforming the future together
        • Kidney Care UK – Creating better materials for patients with rare kidney diseases 
        • Susie Gear/Alport UK – Perspectives on future opportunities - from those living with rare kidney disease
        14.30pm-15.00pm Q&A / concluding talk – Danny Gale and Kate Bramham
        15.00pm-16.00pm Optional time for networking
        16.00pm Close