RaDaR 15 year celebration programme - Thursday 22 May 2025

10:00am - 16:00pm

Resource for London, 356 Holloway Road, London, N7 6PA https://www.resourceforlondon.org/

10.00am Open
10.00am-10.30am Registration and refreshments

10.30am-11.00am

RaDaR past and present

  • Welcome – Danny Gale
  • The origins of RaDaR - Neil Turner and Moin Saleem
  • Where is RaDaR now? - Zoe Plummer and Susan Pywell

11.00am-12.15pm

 RaDaR Research

  • The effects of rare kidney diseases on kidney failure – Katie Wong 
  • Readthrough therapy in Alport syndrome: a proof-of-concept trial in children and adult patients – Danny Gale 
  • Loin pain in IgA Nephropathy – Kristina Newman 
  • Women’s reproductive health and kidney disease – Hannah Beckwith 
12.15pm-13.00pm Lunch
13.00pm-13.15pm A tribute to Ben Walsh – Rhys Evans

13.15pm-14.30pm

Patients and patient charities

  • PKD Charity – 25 years of PKD Charity and 15 years of RaDaR
  • Kidney Research UK – Research for rare kidney diseases: transforming the future together
  • Kidney Care UK – Creating better materials for patients with rare kidney diseases 
  • Susie Gear/Alport UK – Perspectives on future opportunities - from those living with rare kidney disease
14.30pm-15.00pm Q&A / concluding talk – Danny Gale and Kate Bramham
15.00pm-16.00pm Optional time for networking
16.00pm Close