Aim: 

To provide, education, training, learning resources and clinical recommendations for multi-disciplinary healthcare professionals working in kidney care to enable them to deliver safe, effective, person-centred care to adults and children with end stage kidney disease who require supportive care.  

Chairs: Karen Jenkins (Consultant Nurse) & Jyoti Baharani (Consultant Renal Medicine)

Key outputs

  • Qualitative analysis of patient and clinician understanding of supportive care and how it should be implanted in care
  • SEISMIC survey, a three-country survey of kidney supportive care practice (UK, New Zealand and Australia)
  • Paediatric palliative care formulary being developed

Current task and finish groups

The SIG has a unified structure operating through focused task and finish groups.  This approach provides enhanced flexibility and enables members to contribute to specific projects based on their expertise and interests.

  • Symptom Management clinical practice guideline (UKKA published guideline due out in 2026)
  • Establishing Metrics for Supportive Kidney Care (working with the UK Renal Registry)
  • Patient and Professional Perspectives (NKF funded research project)
  • Frailty and CKD clinical practice guideline in early development
  • Forum for junior researchers to present their kidney supportive care or conservative kidney management research ideas for comment and discussion

Share your research ideas

Are you interested in sharing your research ideas for feedback? 

This group is co-led by Prof Fliss Murtagh and Dr Barny Hole and meets online, alternating monthly. These meetings offer an opportunity to network with clinicians and researchers studying kidney supportive care. We typically have a presentation of a research idea or completed project and discuss the implications and potential for future development. Recently, we have looked at qualitative and quantitative studies examining dialysis discontinuation and prescribing in advanced CKD.

You may like to bring an idea or project to discuss, contribute to discussions, or just listen. All members of the research, PPI, and clinical teams are welcome - we want to ensure as broad representation as possible.

We can support any research idea development relating to kidney supportive care or conservative kidney management, as defined by Davison et al. 2024 DOI: 10.1016/j.kint.2023.10.001

Title
e.g. independent research leader, postdoctoral researcher, trained researcher, done a few projects, have dabbled, beginner, etc
Are you a UKKA member?
Please provide a brief (200 words) description of the research project
Do you have funding for this project?
Are you seeking funding?
Please provide a short description (200 words). Some examples – friendly peer review at one of our meetings, collaboration, a research sponsor, methodological expertise, help with recruitment, a supporting letter.