Insights from ADPedKD, ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries
Authors:
Charlotte Gimpel, Steffen Fieuws, Jonas Hofstetter, David Pitcher, Lotte Vanmeerbeek, Stefanie Haeberle, Angélique Dachy, Laura Massella, Tomas Seeman, Bruno Ranchin, Lise Allard, Justine Bacchetta, Umut S Bayrakci, Francesca Becherucci, Victor Perez-Beltran, Martine Besouw, Hanna Bialkevich, Olivia Boyer, Nur Canpolat, Dominique Chauveau, Neslihan Çiçek, Peter J Conlon, Olivier Devuyst, Claire Dossier, Marc Fila, Hana Flögelová, Astrid Godron-Dubrasquet, Ibrahim Gokce, Elsa Gonzalez Nguyen-Tang, Juan David González-Rodríguez, Anne Guffens, Giuseppe Grandaliano, Laurence Heidet, Augustina Jankauskiene, Tanja Kersnik Levart, Bertrand Knebelmann, Jens Christian König, Claudio La Scola, Valentina Fanny Leone, Valérie Leroy, Mieczyslaw Litwin, Laura Lucchetti, Adrian C Lungu, Pierluigi Marzuillo, Antonio Mastrangelo, Monika Miklaszewska, Giovanni Montini, François Nobili, Lukasz Obrycki, Svetlana Papizh, Aleksandra Paripović, Dušan Paripović, Licia Peruzzi, Ann Raes, Seha Saygili, Brankica Spasojević, Thomas Simon, Maria Szczepanska, Francesco Trepiccione, Nataša Marčun Varda, Rik Westland, Selcuk Yüksel, Iga Zaluska-Lesniewska, Julie Tenebaum, Reem Mustafa, Andrew J Mallett, Lisa M Guay-Woodford, Daniel P Gale, Detlef Bockenhauer, Max C Liebau, Franz Schaefer, Djalila Mekahli, RaDaR ADPKD Rare Disease Group, ERKReg Collaborators and ADPedKD Collaborators