Data governance
Managing and protecting data
The UK Kidney Association manages registry information for clinical audit, quality improvement and research. Legal permissions, ethical approvals and data protection requirements govern how we collect, hold and share that information.
The permissions and approvals covering our registries and datasets, including the purposes for which information can be collected and used.
What personal information we hold, how long we hold it, how we use and protect it, and your rights and choices.
Research collaboration
The UK Kidney Research Consortium brings together clinical study groups and research networks to support collaborative research into kidney disease. It is jointly supported by the UK Kidney Association and Kidney Research UK.