Data and Research

Our Registries

Data collected by the UK Kidney Association are used to conduct a wide range of audit and research work to improve the lives of people with kidney disease.

On these pages, you can find out about the data we collect, what we do with the data, how you can apply to use the data and publications based on the data.

The registries and datasets we manage, the information they contain and the people they cover.

About our data

Interactive data portals showing patterns in kidney care, patient experience and outcomes.

View data portals

Application processes, requirements and guidance for using registry data in your work.

Data access guidelines

Annual reports, clinical audit findings and research publications drawing on our registry data.

Browse publications

Information about kidney health records, how we use patient information and how patients help shape our work.

Information for patients

The legal and ethical permissions governing registry data, our privacy notice and how requests to use data are reviewed.

How we manage data