Datasets
Our Data
The UK Kidney Association manages information about people with kidney disease through the UK Renal Registry (UKRR) and the National Registry of Rare Kidney Diseases (RaDaR).
The UKRR brings together demographic, clinical and patient-reported information to support national clinical audit, quality improvement and research. Its collections cover chronic kidney disease (CKD), kidney replacement therapy (KRT), acute kidney injury (AKI) and patient-reported measures.
RaDaR holds detailed information about adults and children with rare kidney diseases, organised into disease-specific cohorts. Following participants over time helps researchers understand how these conditions develop, assess outcomes and inform the development of treatments.
Information contributed by kidney centres, hospital laboratories and patients supports both registries, providing evidence to improve kidney care.
Detailed information on adults and children with rare kidney diseases, including their diagnoses, treatments, test results and outcomes.
Clinical information on adults and children with CKD or receiving KRT, including dialysis for AKI.
Laboratory warning scores and associated test results relating to AKI in adults and children in England.
Information reported by patients about their experiences of care, health outcomes and knowledge, skills and confidence in managing their health.
Centre-level measures of kidney service quality in England, with published results available through the Renal Services Quality Dashboard.
Information collected about COVID-19 infections and vaccination among people receiving care at kidney centres.