Join colleagues from across the kidney community

Explore the past, present and future of rare kidney disease research and treatment in the UK through two days of expert insight, collaboration and discussion.

Sunday 29 November

Clinical education and therapeutic updates

An educational programme designed for renal specialists, trainees and healthcare professionals, featuring expert-led updates from Rare Disease Groups across a range of conditions, including:

• Genetic kidney diseases
• IgA nephropathy
• Vasculitis
• Nephrotic syndrome
• Lupus nephritis

The programme will help clinicians interpret emerging evidence, understand evolving treatment pathways, and confidently support patients as therapeutic options continue to expand.

Monday 30 November

Research methodology, strategy and partnership

A forward-looking programme focused on rare kidney disease research methodology and the future of national and international study design.

Bringing together RaDaR team members, patient representatives, clinicians, academics, industry partners and other key stakeholders, the day will help shape the next phase of rare kidney disease research.

Discussions will explore how RaDaR can integrate large-scale genomic, histology, imaging and health data resources alongside patient-reported outcomes and other patient-centred measures to:

• Generate deeper disease insights
• Improve trial readiness
• Support precision medicine
• Enable more powerful observational and interventional studies

View the full programme

Discover the complete agenda, speakers and session details.