National Registry of Rare Kidney Diseases

The world’s largest registry of rare kidney diseases

RaDaR brings together diagnoses, treatments and test results from adults and children living with rare kidney diseases across the UK. By studying these clinical records over time, researchers can answer questions that individual hospitals cannot investigate alone. The findings help shape clinical trials and build evidence to support new treatments.

The National Registry of Rare Kidney Diseases (RaDaR) is managed by the UK Kidney Association.

More than 40,000 participants across the UK

Upcoming Events

November 29, 2026
Rare Disease Summit 2026
Join colleagues from across the kidney community Explore the past, present and future of rare kidney disease research and treatment in the
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