Transition to Young Adult Special Interest Group
This group aims to optimise the care of young people transitioning to adult services in the UK, to ensure shared decision-making, limit avoidable harm and improve patient outcomes.
Clinical Services
Children and young people with kidney disease require specialist care delivered through paediatric nephrology centres working in partnership with local services. The BAPN Clinical Services Committee supports the planning, organisation and development of these services across the UK. Working with NHS organisations, professional bodies and partner organisations, the Committee contributes to national service specifications, clinical standards and initiatives that help deliver high-quality, equitable care.
Clinical Services Committee Chair: Dr Zainab Arslan
National service specifications
National service specifications describe how specialised paediatric kidney services should be organised and delivered. The NHS England Paediatric Medicine Renal Service Specification sets out the requirements for commissioned specialised renal services in England and is widely used as a reference across paediatric nephrology.
Paediatric kidney transplantation
The BAPN works closely with national organisations involved in paediatric kidney transplantation. The following resources provide information on service delivery, organ allocation, national activity and patient information.
- NHS Blood and Transplant – Kidney Advisory Group (Paediatric Sub-group)
Considers operational aspects of paediatric kidney transplantation, including organ allocation, activity and outcomes. - NHS Blood and Transplant Annual Report on Kidney Transplantation
Annual data and activity relating to kidney transplantation in the UK. - Committee on the Safety of Blood, Tissues and Organs (SaBTO)
Publications and advice relating to the safety of organs, tissues and cells used in transplantation. - InfoKID: Kidney transplantation
- Paediatric kidney transplantation sharing documents
Transition to adult services
Supporting young people as they move from paediatric to adult kidney services is an important part of specialist care. The following national guidance and resources support transition planning and best practice.
- NICE guideline NG43: Transition from children’s to adults’ services for young people using health or social care services
Covering both health and social care, this guideline aims to improve transition and make it a positive experience for young people and their carers. - Ready, Steady, Go Transition Programme
- Department of Health: You’re Welcome – establishing youth-friendly health and care services
- RCP Acute Care Toolkit for Adolescents and Young Adults
Paediatric Patient Reported Experience Measures
Understanding the experiences of children, young people and their families is an important part of improving paediatric kidney services. The Kidney Paediatric Patient Reported Experience Measure (Kidney PPREM) supports kidney centres in measuring patient experience and identifying opportunities to improve care.