The Transform AKC Knowledge Hub brings together learning from across the programme to support quality improvement in advanced kidney care.
Explore the changes being tested by participating kidney teams, learn from the experiences of people receiving advanced kidney care and access resources, webinars and shared learning to inform quality improvement in your own service.
Five kidney centres are testing improvements in different areas of advanced kidney care. This allows the programme to explore different parts of the AKC pathway while sharing learning between participating teams.
Patient education
Improving patient education and engagement, including reviewing information and resources, developing more tailored approaches and reintroducing face-to-face education sessions.
Frailty and shared decision-making
Using frailty assessment to support more personalised care and shared decision-making for people approaching kidney failure.
Symptom management
Improving how symptoms are identified, monitored and managed, including testing symptom assessment tools and strengthening pathways for responding to patients’ symptoms.
Pre-emptive transplantation
Improving the pathway towards pre-emptive transplantation, including better recording of transplant status and identifying delays and opportunities for improvement across assessment and listing.
Health literacy
Identifying health-literacy needs within the AKC population and exploring how this information can be used to make patient information, education and communication more accessible.
Transform AKC is intended to generate learning that can be used beyond the five pilot centres.
Healthcare professionals from across the UK have contributed to the programme through webinars, workshops and shared learning events, while the pilot teams come together to share progress, challenges and approaches.
People with recent experience of advanced kidney care have helped identify what matters most to them and where care could be improved. Their insights are helping to shape Transform AKC and the development of the change package and toolkit.
Kidney professionals have contributed their experience of delivering advanced kidney care, exploring what good care should look like and the barriers services face in providing it. Their insights are helping to inform future resources.