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  1. Home
  2. Project Types
  3. RaDaR

RaDaR

Outcomes from the Northeast England cohort of autosomal dominant polycystic kidney disease (ADPKD) patients on tolvaptan

Authors:
Eleftherios Gkekas, Tsz Yau Tiffany Tang, Alan Green, Han Davidson, Rachel Fraser, John A Sayer and Shalabh Srivastava
Year:
2022
Journal:
Frontiers in Nephrology
Database:
RaDaR
Read paper
Year:
2022
Journal:
Frontiers in Nephrology
Database:
RaDaR

An international patient-centred study of retroperitoneal fibrosis

Authors:
R Dattani, T D Barwick, G El Wardany, N Gibbons, J C Mason, P Morgan, C D Pusey, F W K Tam, J A P Tomlinson and RaDaR Rare Disease Group (RDG)
Year:
2022
Journal:
QJM
Database:
RaDaR
Read paper
Year:
2022
Journal:
QJM
Database:
RaDaR

Exploring the relevance of NUP93 variants in steroid-resistant nephrotic syndrome using next generation sequencing and a fly kidney model

Authors:
Agnieszka Bierzynska, Katherine Bull, Sara Miellet, Philip Dean, Chris Neal, Elizabeth Colby, Hugh J McCarthy, Shivaram Hegde, Manish D Sinha, Carmen Bugarin Diz, Kathleen Stirrups, Karyn Megy, Rutendo Mapeta, Chris Penkett, Sarah Marsh, Natalie Forrester, Maryam Afzal, Hannah Stark, Nihr BioResource, Maggie Williams, Gavin I Welsh, Ania B Koziell, Paul S Hartley and Moin A Saleem
Year:
2022
Journal:
Pediatric Nephrology
Database:
RaDaR
Read paper
Year:
2022
Journal:
Pediatric Nephrology
Database:
RaDaR

Alport syndrome natural history from the RaDaR registry: Associations with gene, variant type and sex

Authors:
Katie Wong, David Pitcher, Shiguang Liu, Julie Lin, Ali Hariri, Alex Mercer, Bruce Hendry, Andrew Neil Turner and Daniel Gale
Year:
2023
Journal:
Nephrology, Dialysis, Transplantation
Database:
RaDaR
Read paper
Year:
2023
Journal:
Nephrology, Dialysis, Transplantation
Database:
RaDaR

Next generation sequencing (NGS) in the UK steroid resistant nephrotic syndrome (SRNS) study reveals complex genetic heterogeneity

Authors:
HJ McCarthy, A Bierzynska, M Wherlock, GI Welsh and MA Saleem
Year:
2012
Journal:
Archives of Disease in Childhood
Database:
RaDaR
Read paper
Year:
2012
Journal:
Archives of Disease in Childhood
Database:
RaDaR

Effects of rare kidney diseases on kidney failure: a longitudinal analysis of the UK National Registry of Rare Kidney Diseases (RaDaR) cohort

Authors:
Katie Wong, David Pitcher, Fiona Braddon, Lewis Downward, Retha Steenkamp, Nicholas Annear, Jonathan Barratt, Coralie Bingham, Richard J. Coward, Tina Chrysochou, David Game, Sian Griffin, Matt Hall, Sally Johnson, Durga Kanigicherla, Fiona Karet Frankl, David Kavanagh, Larissa Kerecuk, Eamonn R. Maher, Shabbir Moochhala, Jenny Pinney, John A. Sayer, Roslyn Simms, Smeeta Sinha, Shalabh Srivastava, Frederick W. K. Tam, A. Neil Turner, Stephen B. Walsh, Aoife Waters, Patricia Wilson, Edwin Wong, RaDaR consortium, Karla Therese L. Sy, Kui Huang, Jamie Ye, Dorothea Nitsch, Moin Saleem, Detlef Bockenhauer, Kate Bramham and Daniel P. Gale
Year:
2024
Journal:
Lancet
Database:
RaDaR
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Year:
2024
Journal:
Lancet
Database:
RaDaR

C3 Glomerulopathy and Related Disorders in Children: Etiology-Phenotype Correlation and Outcomes

Authors:
Edwin K. S. Wong, Kevin J. Marchbank, Hannah Lomax-Browne, Isabel Y. Pappworth, Harriet Denton, Katie Cooke, Sophie Ward, Amy Claire McLoughlin, Grant Richardson, Valerie Wilson, Claire L. Harris, B. Paul Morgan, Svetlana Hakobyan, Paul McAlinden, Daniel P. Gale, Heather Maxwell, Martin Christian, Roger Malcomson, Timothy H. J. Goodship, Stephen D. Marks, Matthew C. Pickering, David Kavanagh, H. Terence Cook and Sally A. Johnson
Year:
2021
Journal:
Clinical journal of the American Society of Nephrology
Database:
RaDaR
Read paper
Year:
2021
Journal:
Clinical journal of the American Society of Nephrology
Database:
RaDaR

Simultaneous sequencing of 24 genes associated with steroid-resistant nephrotic syndrome

Authors:
Hugh J. McCarthy, Agnieszka Bierzynska, Matt Wherlock, Milos Ognjanovic, Larissa Kerecuk, Shivaram Hegde, Sally Feather, Rodney D. Gilbert, Leah Krischock, Caroline Jones, Manish D. Sinha, Nicholas J. A. Webb, Martin Christian, Margaret M. Williams, Stephen Marks, Anja Koziell, Gavin I. Welsh and Moin A. Saleem
Year:
2013
Journal:
Clinical journal of the American Society of Nephrology
Database:
RaDaR
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Year:
2013
Journal:
Clinical journal of the American Society of Nephrology
Database:
RaDaR

Genomic and clinical profiling of a national nephrotic syndrome cohort advocates a precision medicine approach to disease management

Authors:
Agnieszka Bierzynska, Hugh McCarthy, Katrina Soderquest, Ethan Sen, Elizabeth Colby, Wen Ding, Marwa Nabhan, Larissa Kerecuk, Shivram Hegde, David Hughes, Stephen Marks, Sally Feather, Caroline Jones, Nicholas Webb, Milos Ognjanovic, Martin Christian, Rodney Gilbert, Manish Sinha, Graham Lord, Michael Simpson, Ania Koziell, Gavin Welsh and Moin Saleem
Year:
2017
Journal:
Kidney international
Database:
RaDaR
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Year:
2017
Journal:
Kidney international
Database:
RaDaR

Long-Term Outcomes in IgA Nephropathy

Authors:
David Pitcher, Fiona Braddon, Bruce Hendry, Alex Mercer, Kate Osmaston, Moin A Saleem, Retha Steenkamp, Katie Wong, Neil Turner, Kaijun Wang, Daniel Gale and Jonathan Barratt
Year:
2023
Journal:
Clinical Journal of the American Society of Nephrology
Database:
RaDaR
Read paper
Year:
2023
Journal:
Clinical Journal of the American Society of Nephrology
Database:
RaDaR

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