Publications from the RaDaR database

Quantifying association of early proteinuria and estimated glomerular filtration rate changes with long-term kidney failure in C3 glomerulopathy and immune-complex membranoproliferative glomerulonephritis using the United Kingdom RaDaR Registry

Year: 2025

Journal:

Kidney International

Authors:

Clare Proudfoot, Daniel Gale, David Pitcher, Edwin Wong, Katie Wong, Lewis Downward, Nicholas Webb, RaDaR Consortium, Sherry Masoud

Databases:

RaDaR

Long-Term Outcomes in Nephrotic Syndrome by Kidney Biopsy Diagnosis and Proteinuria

Year: 2025

Journal:

Clinical Journal of the American Society of Nephrology

Authors:

Alex Mercer, Bruce Hendry, Daniel Gale, David Pitcher, Fiona Braddon, Jonathan Barratt, Katie Wong, Moin Saleem, Neil Turner, Retha Steenkamp, Wu Gong

Databases:

RaDaR

Insights from ADPedKD, ERKReg and RaDaR registries provide a multi-national perspective on the presentation of childhood autosomal dominant polycystic kidney disease in high- and middle-income countries

Year: 2025

Journal:

Kidney International

Authors:

Charlotte Gimpel, David Pitcher, Jonas Hofstetter, RaDaR ADPKD Rare Disease Group, Steffen Fieuws

Databases:

RaDaR

WCN25-3817 Loin Pain In Rare Kidney Disease: Analysis of 3867 Questionnaire Responses With Linked Data From The UK National Registry of Rare Kidney Diseases (RaDaR)

Year: 2025

Journal:

Kidney International

Authors:

Daniel Gale, Haresh Selvaskandan, Jonathan Barratt, Katie Wong, Kristina Newman, Sherry Masoud, Susan Pywell, Zoe Plummer

Databases:

RaDaR

Developing Therapies for C3 Glomerulopathy Report of the Kidney Health Initiative C3 Glomerulopathy Trial Endpoints Work Group

Year: 2024

Journal:

Clinical Journal of the American Society of Nephrology

Databases:

RaDaR

A Randomized Controlled Clinical Trial Testing Effects of Lademirsen on Kidney Function Decline in Adults with Alport Syndrome

Year: 2024

Journal:

Clinical Journal of the American Society of Nephrology

Databases:

RaDaR

Clinical Predictors of Long-term Outcomes in C3 Glomerulopathy and Immune-Complex Membranoproliferative Glomerulonephritis within the UK RaDaR Registry

Year: 2024

Journal:

medRxiv

Databases:

RaDaR

Course of paediatric ANCA-associated glomerulonephritis: advocating for an age-inclusive approach

Year: 2024

Journal:

RMD Open

Databases:

RaDaR

Description and Cross-Sectional Analyses of 25,880 Adults and Children in the UK National Registry of Rare Kidney Diseases Cohort

Year: 2024

Journal:

Kidney International

Databases:

RaDaR